Program

This year, the 7th edition of Duchenne Patient Academy will take place. The training for Duchenne and Becker muscular dystrophy (DMD/BMD) patient advocates takes place in Athens, Greece on November 30, December 1 and December 2.

Over the course of 3 days, Duchenne Patient Academy attendees will listen to speakers and attend panel discussions moderated by experts in their respective field. As with last year, attendees have the opportunity to become involved in the dialogue and share their experiences.

Below you can find the draft agenda. Please note that changes in topics and speakers may occur.

Thursday November 30

Registration & Coffee
Welcome & Introduction
Overview of DMD/BMD Research
Introduction to Statistics and Practical Applications
Update on Clinical Trials & Treatments
Lunch
Education to Promote Care & Inclusion
Accredited Duchenne Centers Program
Social Dinner

Friday December 1

Welcome & Introduction
Medicine Approval Process
What Companies Look for in Clinical Trial Sites
Lunch
Successful Implementation of Standards of Care
Telemedicine
Social Dinner

Saturday December 2

Welcome & Introduction
Understanding the Landscape of Global Advocacy
Negotiation and Influencing Skills
Interactive Workshops
Workshop Outcomes
Wrap-up & Celebration
Lunch