Duchenne Patient Academy

Global patient advocacy initiative to create a broader and deeper understanding of Duchenne and Becker Muscular Dystrophy and coordinate the global advocacy strategy of the community.

APPLICATIONS OPENING SOON

Effective global patient advocacy

Become an expert on BMD/DMD and be equipped with the advocacy needed to improve the lives of those affected.

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Online training

Join the global virtual training with global experts.

Certificate

You will receive an official certificate upon completion.

Apply Now

Applications are opening soon! Stay tuned.

PROGRAMME

Duchenne Patient Academy

Courses will be added soon.

ACHIEVEMENTS

Here you can review some statistics about Duchenne Patient Academy

COUNTRIES INVOLVED
PATIENT ORGANISATIONS
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DPA GRADUATES
APPLICATIONS OPENING SOON

DEFINE GLOBAL PATIENT ADVOCACY

Join the intensive one-week course and learn about the science, policy, research, strategy and regulatory framework. Applications will open soon!

PROGRAM

SPEAKERS

Global training for Duchenne and Becker muscular dystrophy patient advocates

Speakers will be published soon

The program for Duchenne Patient Academy 2021 is currently being created. Please subscribe to the newsletter of the Duchenne Data Foundation to be notified when applications are open!

What will you learn

Grassroots funding and impact investment

Clinical trial research and development

Global policy making and regulatory affairs

Data collection and registries

Patient voice in medicine development

PARTNERS

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SPONSORS

Italfarmaco
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Solid BioSciences
Sarepta
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