Apply for Duchenne Patient Academy 2022
World Duchenne Organization partners with Duchenne Data Foundation to enhance patient advocacy and education and help drive the international advocacy agenda for people living with dystrophinopathies.
Are you a Duchenne and/or Becker MD patient advocate? Do you have a serious interest in the unique challenges of patient advocacy? Join us December 1 – 3 at Duchenne Patient Academy and receive training and updates to set a strong basis for current and future global advocacy.
As the dystrophinopathy field seeks to empower patient representatives to advocate for better quality and quantity of life, collaborating to educate the global community is essential. To help support this goal, we are excited to announce that applications for the 2022 edition of Duchenne Patient Academy are now open.
Title: Duchenne Patient Academy 2022
Date: December 1 – 3, 2022
Time: 15:00 – 19:00 Central European Time
Once again, World Duchenne Organization and Duchenne Data Foundation are partnering to enhance and expand knowledge. Duchenne Patient Academy prepares to welcome 150 highly motivated patient representatives.
The virtual training will take place December 1-3, 2022 from 15:00 to 19:00 Central European Time. You can apply by completing the form above. Proficient knowledge of the English language is required to follow and participate in Duchenne Patient Academy. Applications will be open until November 10, 12:00 Central European Time.
This year’s program theme is Changing Perspectives. The program is designed to balance the latest information with sharing of experience on topics that are of interest to the community. The 2022 DPA curriculum is built on the following topics: Research & Innovation, Advocacy & Networking, and Care & Allied Therapies.
First, a session is started with a landmark presentation by an expert in the field. Secondly, participants will listen to the local experiences regarding this theme, gaining a broader understanding of possible challenges and solutions. Lastly, all speakers will join the interactive panel discussion, setting the strategic path for the future. Participants will learn:
- How to make strategic decisions to scale up their organization
- Be updated on clinical research and developments
- Implement learnings from the advocacy community to enhance the lives of people with dystrophinopathy in their country
In addition to the interactive sessions, there will be a poster session where selected posters will be presented. We encourage patient representatives, researchers, academics, and healthcare professionals to submit a poster abstract. Poster submission is not limited to participants. More information on how to submit a poster abstract will be available soon.
We are looking forward to a fruitful Duchenne Patient Academy 2022, delivering high-quality and relevant skills training to Duchenne patient advocates.