CF Gordey (russia)
Develop a better understanding of Duchenne and Becker muscular dystrophy global frameworks in NMD conditions. Connect the global community to define best practices of international advocacy to drive sustainable research and care.
In 2017, the first Duchenne Patient Academy (DPA) was launched in Athens, Greece. This global patient advocacy initiative was formed by the Duchenne Data Foundation to create a broader and deeper understanding of Duchenne and Becker Muscular Dystrophy (DMD and BMD) and coordinate the global advocacy strategy of the community.
Over the scope of three years, Duchenne Patient Academy has evolved into a global initiative connecting Duchenne and Becker MD patient organisations from across the world.