How to coordinate global policy

Durhane Wong-Rieger
Durhane Wong-Rieger
  • 20 minute duration

About the session

This presentation discusses role of patient organizations in advancing global policy, including examples of global healthcare policies, why acting to influence global policy is important; what global policies should patient organizations engage with; who acts and what are the benefits (and challenges) of collaborations and alliances.

Learning outcomes

  1.  What are relevant global policies affecting rare diseases?
  2.  Who are global partners and how can patient advocacy organizations participate?
  3.  What are benefits and challenges of global coordination on policy and other areas?