- 20 minute duration
About the session
This presentation discusses role of patient organizations in advancing global policy, including examples of global healthcare policies, why acting to influence global policy is important; what global policies should patient organizations engage with; who acts and what are the benefits (and challenges) of collaborations and alliances.
Learning outcomes
- What are relevant global policies affecting rare diseases?
- Who are global partners and how can patient advocacy organizations participate?
- What are benefits and challenges of global coordination on policy and other areas?