- 20 minute duration
As a person diagnosed with neuromuscular disorder I rely on the help of patients’ organizations. I am very much convinced that thanks to their efforts, patients would have better chance to observe how different health systems in Europe work and they are able to understand the pros and cons of healthcare systems in their own countries. Being a patient, I believe it’s important to stay united and to work together as a patient community.
It is my understanding that young patients could provide valuable perspective and they deserve to be involved in the decision-making process of patient advocacy from the beginning. That is why I am interested in this session and I believe that together we can exchange valuable experience about young patients’ involvement in patients’ organizations and how to present young people’s needs in the best possible way. Young patients are young people and we deserve our voices to be heard.
- Better understanding of young patients’ needs.
- How to engage young patients in patients’ organizations.
- Projects and topics which are interesting for young patients.