Advancing a patient organisation to the next level

Nicoletta Madia
Nicoletta Madia
  • 45 minute duration


The life of a patient organization follows the general stages of life: there comes a time when you have to grow up. But growth requires tools and information.

In the session, participants will be able to see which tools and ideas are useful for growing their organization by creating a strategic plan.

Learning outcomes

  1. How to develop a strategic plan
  2. How to manage projects
  3. How to use communication tools for your organization
Nicoletta Madia
Nicoletta Madia
Nicoletta Madia is the Community Manager of the World Duchenne Organization. She also works as project manager at the Centro Clinico NeMO of Rome, paediatric area, a Center focused on neuromuscular diseases and at Duchenne Data Foundation a worldwide collaboration in order to enhance the understanding of the course of DMD/BMD. Prior to this, she was the Head of Fundraising and communication for Parent Project Italy from 2011–2018, and Fundraiser for Manitese, an NGO focused on international cooperation, from 2008 –2011. With over a decade of specialised fundraising and communication knowledge, Nicoletta is particularly focused on communication, project development and community building of patient advocacy groups.